**Wride Family**: Too scary to write!

It has taken me a couple days to write this post because the situation was so scary i needed a couple days to get over it.

Saturday afternoon i gave Bailee her first does of an antibiotic named Septra. It is a preventative antiobiotic while we decided whether we are going to do surgery or not. A couple hours later she had diarrhea and went pale. I thought that was pretty weird and then about 10 minutes later she threw up a huge amount! It was very thick and mucusy(not sure of spelling haha). Once again i thought that was weird. She was acting super hungry so i decided to feed her. Well halfway through her bottle she threw up even more! Holy cow i started to get worried. I took her temp and it was 100.3. Great now she had a fever. So i called the on call doctor and talked to the nurse. As i was telling her everything that was going on Bailees mouth, hands and feet started turning blue!!!!!! I started freaking out and told the nurse. Here is her reply, " Well now i dont really now what you are concerned about?" I was like my baby is blue and throwing up! She proceeds to say, "Well that could be caused by a few different things why dont you wait it out and call us back tomorrow if things gets worse and we will make an appointment." EXCUSE ME!!!!!!! I hung up the phone and started freaking out. I had Chance and Nate give Bailee a blessing and right after i felt very strongly that we need to go to the ER ASAP! As i was walking out the door Bailee started struggling to breathe. In the back of my mind i knew she would be ok because her blessing said she would be. But in the front of my mind i was a complete mess and couldnt imagine losing my little girl. On the way to the hospital i was having a really hard time keeping her awake as Chance drove like a crazy person! No matter how much i pinched her or squeezed her she wouldnt even react. She would just look at me with her eyes half open. We finally got to the ER and they immediately took her back. She got way worse from my house to the hospital. She was lethargic, her entire body was blue and her SATs were in the 70's(meaning she wasnt getting very much oxygen. Chances mom and sister and my brother met us there thankfully, i needed all the support i could get. They quickly put her on oxygen and she started crying and turning pink. I was a little relieved but i knew something else was wrong. They thought she may have aspirated and her throw up got into her lungs. They did a million and one tests and everything came back normal.

That is when i really started to worry. My worst fear is for my kids to have something that is a mystery and no one can find out what it is. We were in the ER for i think 5 or so hours, with no answers. Bailees SAT's remained the same, really good, but she would all of the sudden turn blue. It was so scary i just wanted them to find out what was wrong RIGHT THEN!!! She was suffering and having such a hard time breathing i couldnt even handle it. Finally they admitted Bailee up to the pediatric floor. The Pediatrician that was there was amazing. He came in an assessed Bailee and and wanted to know every detail. They hadnt let her eat for 7 hours at that point, so not only was she struggling with everything else, she was also STARVING!!! After he examined her he let her eat and she was MUCH better! They had her still hooked up to oxygen and had an Iv of fluids going as well. She was dehydrated from all the throwing up and not eating for 7 hours. The doctor left the room and didnt come back for a while. Finally he came back, and came back with answers! He researched and researched and finally figured out that she had a weird chemical reaction to the antibiotic i gave her. He explained to me that the hemoglobins hold all the oxygen and release it to the tissues. Well the antibiotic i gave her made it so that the hemoglobins held on to the oxygen instead of releasing it. That is why the computers were saying she had enough oxygen in her body but yet she was still very blue. Thankfully that was an easy fix! We just had to wait for that dose to get out of her system. I was so happy when he told me that. That it wasnt some weird random disease or something they couldnt figure out. I was also trying not to think about the possibility that it could have been heart failure. I wouldnt even let my brain think about it. He also said she was dehydrated!

Finally things calmed down and we were able to let Bailee fall asleep. But not for long. About every hour they were coming in to do more tests. A lot of needles and and squeezing blood out. Plus some suctioning even though they couldnt get anything out because she wasnt congested. It was a really long night and Bailee was waking up about every 5 minutes. She was really uncomfortable and was still breathing really weird to me. By the time all the doctors left and i was able to try to sleep it was about 2am. At 3am i still had not fallen asleep because Bailees breathing was still just too weird sounding to me. She would breathe, hold it and let it out and repeat. The whole night she did this. It was so terrible! Well at 3am i checked her and it felt like she had a fever so i ran and got the nurse and sure enough she had a fever of 100.4. Yes a low grade fever but too high for such a tiny baby. They gave her some tylenol and came back and checked in about 45 minutes. Her temp went up to 100.8! But then came right down to 98.6. I am guessing her fever just had to peak and then it would break. So between the fever and the breathing there was no way i was going to sleep. No worries for Chance though. Not one single thing woke him up at all the whole night! What a bum! At about 4am the nurse came in and told me to get into bed and that she would sit there and rock Bailees crib and watch her so i could get some sleep. that was all i needed. I fell asleep so quickly. I just needed to know that someone was watching her and making sure everything was ok. That was so nice of the nurse! I only got to sleep for almost 2 hours and then they had to run more tests so We were up! As Sunday went along they would not let us go because they still had no idea where the fever came from. There was no infection and all her tests came back normal. So we had to wait 24 hours to make sure the fever didnt return. Throughout the day Bailee got better and better. Soon enough, she was back to her sweet and smiley self! Thankfully.

We were finally discharged Monday afternoon. Still no answers to the fever but i was just so thankful to be going home but also a little worried because i just felt like Bailee was safe in the hospital. Since then Bailee has been doing really good. She has been sleeping pretty all day because i am sure she is so exhausted from the long weekend. I just look at her and get butterflies to know that she is still with us and is back to normal.

One more thing i wanted to note: We now know that this trip to the ER was not for Bailee and that Bailee was always going to be ok, this trip was for me and Chance. Oddly enough it was an answer to our prayers. As you know from my previous post, we were needing to decide whether or not to do surgery or antibiotics for her reflux of the bladder. Well we know for sure now. Chance and i were pretty dead set on doing the surgery, for all the reason i stated in the previous post. Then when we finally figured out that it was the antibiotic that caused all this mess, we thought for sure our answer was to do the surgery!Little did we know.................. When the doctor was assessing Bailee ei had mentioned that we were probably going to do the surgery and he gave me a weird look. After he researched every note and medical history on Bailee he came back to talk to us. He asked me why we were thinking about doing the surgery. I told him everything about her immune system and how we obviously dont have luck with antibiotics. He very politely said, " I do not want to cloud your decision because it is completly up to you and your husband, but, the antibiotic i would prescribe you is one that is specific to the urine. It only catches the bacteria in the urine. It wont touch any part of her immune system.I have had a lot of patients with this problem and none of them have come out with immune system problems, in fact most of them grow out of it within the year. My recommendation for you is that you try this antibiotic and if she gets another bladder infection then definitely do the surgery because clearly antibiotics are not going to work. But if she doesnt then keep her on them. She will most likely grow out of it and you will never have to do the surgery." WHAT THE HECK!!! Why has no other doctor told me that or wanted to prescribe that????? Of course i asked a million more questions and that option was becoming very enticing. Now to back up a little bit, I was supposed to give her the antibiotic on Friday but kept forgetting. Then i was going to give it to her Saturday morning but forgot again. When i finally gave it to her it was Saturday evening, just in time for that particular doctor to be there. That was his only shift that weekend. He wasnt there earlier either. Both my dad and Chances mom had very strong impressions that Bailee was going to be fine but that we were there to recieve an answer to our prayers. Now when they told me that i was like yea right this is not an answer to any prayer of mine!!! But sure enough it was. Poor little Bailee had to suffer so we could get an answer, but who knows what she would have suffered through if we did the surgery.

On a lighter note i wanted to add so funny and cute pictures to lighten up this post!